Hi, my name is Ernie Ingles and I am the AlphaNet Canada Patient Services Coordinator for Alberta and British Columbia, Canada.
I was diagnosed with Alpha-1 Antitrypsin Deficiency in the fall of 2013; this was after almost five years of visible deterioration of my respiratory functions, attributed generally to COPD but with no specifics as to cause and the rate of deterioration of function. A change of physicians and a few tests later and the diagnosis was made—and confirmed! I have been on augmentation therapy since March 2014. On July 1, 2019, I had a double-lung transplant.
When a child my world was one of books. I read, and read, and read some more. As a teen the affliction continued; continued but slowed as a working adult but has blossomed again in retirement. During my university experience I not only completed my B.A. M.A. and M.L.S., but I also fell in love with Canada. During this period was the 1967 Centennial Celebration, and like so many I hitchhiked across the country. Since those halcyon days, I made my career as a librarian, as a Canadianist and, in the latter years as a senior university administrator. I have lived and worked in British Columbia, Alberta, Saskatchewan, Ontario and Quebec. I take pride that I have visited all parts of all provinces and territories, except for Nunavut.
I live in Edmonton, Alberta but spend time in Penticton, British Columbia (with my daughter, son-in-law, and grandsons) when the weather is simply too cold for my lungs in Edmonton. I try to spoil the boys (alas no girls) and make no apology for my behaviour.
I am delighted to be a member of the AlphaNet Canada team. I want to give back and help other Alphas. At the same time I also want to learn, and I learn more from other Alphas than I would ever learn by, well, reading! I also feel obligated to assist, however marginally, researchers who are labouring on behalf of all of us.
Coordinator: Ernie Ingles
Telephone: (844) 490-8687
Territories: Alberta and British Columbia