I’m Jon Holmes, and I proudly serve with AlphaNet Canada supporting Ontario and Prince Edward Island.

My journey with Alpha-1 Antitrypsin Deficiency began in 2011, a pivotal moment that has deeply influenced my understanding of the challenges faced by individuals with this condition. Despite contending with asthma since childhood, I remained active in athletics. However, around 2010, I experienced a resurgence of respiratory issues during vigorous outdoor activities, leading to my Alpha-1 diagnosis after nearly two decades of symptom-free living. Following my diagnosis, I underwent augmentation therapy from 2013 until 2017, when I eventually received a life-changing bilateral lung transplant in Toronto in 2020.

Beyond my medical experiences, I bring a wealth of expertise as an Industrial Designer specializing in marketing. Over the years, I’ve worked across diverse industries, including architecture, contract furniture, and bio/medical technology, infusing my work with creativity and innovation. Outside of the professional realm, I’m an avid outdoorsman, finding solace and joy in angling, foraging, camping, hiking, and canoeing whenever possible.

Joining the AlphaNet Canada Team has been immensely fulfilling for me. I cherish the opportunities to connect with fellow Alphas, sharing our experiences, and providing support where I can. Moreover, I’m passionate about contributing to the advancement of Alpha-1 treatments by offering insights to researchers, fueled by the hope of one day finding a cure.

With dedication, empathy, and a shared mission, I strive to make a meaningful impact within the Alpha-1 community, embodying resilience and advocacy every step of the way.

Coordinator:  Jon Holmes

Telephone:  (888) 254-4993

Territories:  Central/Eastern Canada