AlphaNet Canada is a registered charity in Canada, which began operations on April 1, 2014. Our mission is simple: to improve the lives of individuals in Canada who are affected by Alpha-1 Antitrypsin Deficiency, which is also known as ‘Alpha-1’.
We are totally focused upon providing health management services for individuals (‘Alphas’) who have been diagnosed with, and are living with, the Alpha-1 condition. Because we are governed by and employ Alphas, our own personal experiences provide us a unique understanding of how the Alpha-1 deficiency affects the lives of the Alphas who subscribe to our free services.
Based in Etobicoke, Ontario, AlphaNet Canada is governed by a Board of Directors – a majority of whom are Alphas and Canadian citizens. We are committed to “Alphas Serving Alphas.” The AlphaNet Disease Management and Prevention program, commonly known as ADMAP program, serves as the underpinning of the effort to improve the quality of lives of Canadian Alphas. This program has resulted in high augmentation therapy compliance with fewer exacerbations, unscheduled doctor visits and hospitalizations.
Who does AlphaNet Canada serve?
We are here to help Alphas who:
Are currently infusing Prolastin and participating in the Prolastin Direct Canada Program.
Are currently infusing Prolastin but not enrolled in the Prolastin Direct Canada Program.
Have prescriptions for Prolastin augmentation therapy but have not been able to obtain it due to health insurance issues.
Are diagnosed with severe Alpha-1 and who do not have a prescription for augmentation therapy.
AlphaNet Canada is also here to support and provide educational information to Alpha families and caregivers.
“We want to help people learn how to stay as healthy as possible, given their breathing condition, by steering them toward AlphaNet Canada’s best health management resources which include the personalized support offered by their AlphaNet Canada Coordinator, the Big Fat Reference Guide and the Skinny Little Reference Guides.”